Such approaches affect decisions about sharing much older legacy CTs.
Most importantly, any Duty of Confidentiality (DoC) made at the time of the original research must be upheld. or alive but cannot be contacted, or where resources required to contact would australia rcs data be too costly, ‘reasonable expectations’ test can be created (for example, via a research ethics review committee). Such a test would identify whether a new intended use is in keeping with the broader aims of the study, and/or in the public interest. The wording in much older consent forms may be put to a test, as GDPR and other regulations now support a more precise definition of personal data or data with risk of identification, under GDPR.
The workshop worked through examples and exercises demonstrating how a CT dataset could be evaluated for risk and then treated for sharing; namely by removing direct identifiers and by looking at unique combinations of identifying or unusual information. In the case of identifying example attributes of a mother in the trial giving birth were:
very high BMI,
high parity (the number of times a female is or has been pregnant (gravidity) and carried the pregnancies to a viable gestational age)
death as an outcome.